Chinese man, 29, suffers from Lou Gehrig's disease, still living life

Updated: 16 Nov 2012
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Chinese man Wang Jia, 29, suffers from the same condition that gripped Stephen Hawking. He could only communicate with the outside world by eye movement and the picture shows how he was feeded.
The man still gets firmative eye.
The computer software that helps Wang Jia express himself via eye movement.
A paralyzed young Chinese man, who could only communicate with the outside world through eye movements due to the same rare disease that Stephen Hawking is afflicted with, has moved the whole world by creating a fund for patients who share his condition.

Five years ago, Wang Jia was diagnosed with the incurable Lou Gehrig's disease when he was 24 years old, just a month after he won a 100-meter race in 12.37 seconds against his co-workers.

Most people die within a few years of the diagnosis, also called ALS (amyotrophic lateral sclerosis). Patients may ultimately lose the ability to initiate and control any voluntary movement.

But the former fashion graphic designer didn't give up, and instead he made his mind up to live to the fullest in his remaining years, which he estimated to be 5 years.

Wang Jia donated 300,000 yuan he earned from his two design works, one focused on the Beijing Olympics and another one on the 2008 Sichuan Earthquake, to children suffering from cerebral palsy.

He recorded his battle with the disease on his computer, saying: "I never give up. I am not stripped of dignity. I choose to smile before all the misery and leave it within myself." and "I am not a coward. It doesn't matter if you can't understand the way I communicate with you. I have wisdom and emotions in my eyes that you will understand one day."

He didn’t stop typing on the computer until he was unable to lift the last finger he could move.

Now he communicates with the outside world through his eye movements thanks to custom-made computer software.

His memoir Life is Without If (sheng ming mei you jia ru) is available at Xiamen Waitu Bookstore and online bookstores.

The Wang Jia Amyotrophic Lateral Sclerosi Foundation was set up on November 4th with the profits from his book and 1.7 million yuan of donations from other people.

There are 200,000 people in China suffering from ALS disease.
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Comments Area ( Total Comments: 1 )
luckyone1 Commented on 16 Nov 2012
His strong moved me deeply